生命が限られている、あるいは生命を脅かされている小児と若年者のための子ども中心のケアの実現―質的インタビュー調査

Coombes L, Braybrook D, Roach A, Scott H, Harðardóttir D, Bristowe K, Ellis-Smith C, Bluebond-Langner M, Fraser LK, Downing J, Farsides B, Murtagh FEM, Harding R; C-POS.

Achieving child-centred care for children and young people with life-limiting and life-threatening conditions-a qualitative interview study.

Eur J Pediatr. 2022 Aug 12:1–14.

doi: 10.1007/s00431-022-04566-w.

Epub ahead of print. PMID: 35953678; PMCID: PMC9371630.

インタビュー対象者にきょうだい13名も含まれています。

A total of 106 participants were recruited: 26 children (5-17 years), 40 parents (of children 0-17 years), 13 siblings (5-17 years), 15 health and social care professionals, 12 commissioners.

https://pubmed.ncbi.nlm.nih.gov/35953678/