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Attitudes about the use of internet support groups and the impact among parents of children with Cornelia de Lange syndrome

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Cacioppo CN, Conway LJ, Mehta D, Krantz ID, Noon SE.

Am J Med Genet C Semin Med Genet. 2016 Jun;172(2):229-36. doi: 10.1002/ajmg.c.31504. Epub 2016 May 10.

https://doi.org/10.1002/ajmg.c.31504

27163126

52598425_2213806042012952_84802132572173

​Meeting to spread sibling support

The Society for Disseminating Sibling Support has been active since 2004 with the aim of disseminating support for siblings of people with chronic illnesses and disabilities. Since the challenges that siblings can have change with age and last a lifetime, the support targets include not only children but also adults.

© ©​ Meeting to spread sibling support

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